Task Force Explores Early Detection and Diagnosis of Children with a Primary Muscle Disease
AAPA recently attended a task force meeting sponsored by the Parent Project Muscular Dystrophy (PPMD) in Atlanta, Ga. The meeting was a collaboration of many professional groups who have an interest in the early detection and diagnosis of children who have a primary muscle disease.
The meeting’s main goals were to promote the message that primary care providers should focus on a child’s walking/running/stair climbing and adequately evaluate hypotonia when assessing children suspected of developmental delay.
The task force plans to develop a Web page for parents, child care providers, and educators, as well as a separate page for health care professionals which will include diagnostic toolkits.
A sampling of the participants included the American Academy of Pediatrics, National Society of Genetic Counselors, National Association of Pediatric Nurse Practitioners, Child Neurology Society, and Muscular Dystrophy Association.
For more information about PPMD and Duchenne Muscular Dystrophy, click here.
Doug Scott, This e-mail address is being protected from spambots. You need JavaScript enabled to view it
